We Are Home

Lucas was discharged from Phoenix Children’s Hospital. We’re very happy to be home!

Today, Lucas was placed on prednisolone (steroid) for 4 days to further help open up his lungs to combat the croup & rhinovirus symptoms. Praying he gets noticeable better with each passing day.

Pics from our hospital room on the 9th floor. We had a gorgeous view of downtown Phoenix, south mountain, & Sky Harbor Airport. We passed the time by watching planes take off & land at the airport at all hours of the day. 

Lucas Update

Lucas has made some significant improvements in the last few hours. Most importantly, his oxygen level is staying between 90% -95%. Feeling very blessed. Thank you for all the prayers!

​Armpit thermometer fun time…

Lucas Was Admitted To Phoenix Children’s Hospital

​Lucas was admitted to Phoenix Children’s Hospital this morning at 2am due to oxygen levels below 92%, labored breathing, a fever over 100.5, and a few more issues. For now, PCH confirmed Lucas has croup and tested positive for the rhinovirus. Please say a prayer that Lucas’ oxygen levels start to rise and he starts to feel better. Thank you!

Throughout this PCH visit, the song “Thy Will” by Hillary Scott & family keeps coming to my head to hum to Lucas whenever he is uncomfortable and needs to be soothed. 

27th Surgery

​Dr. Manfredi decided Lucas’ esophagus looked “really good” & he saw “no signs of reflux damage”! So he only took biopsies to test for reflux and decided not to dilate. For now, he wants us to increase Lucas’ bite size and allow Lucas to self manage his bites rather than us cutting food up for him. We may have more food getting stuck but Lucas needs to be a big boy and learn what bite sizes he can handle. Most importantly, Dr. Manfredi forsees we can wait a full year before returning to Boston for another dilation surgery. Such great news! 

The bronchoscopy once again confirmed Lucas has severe tracheomalicia where there are sections in the lower 2/3 of the trachea which collapse by 80%-90% when Lucas exhales. The bronchoscopy was very hard on Lucas’ trachea. So he came out of surgery sounding junky and coughing. Plus, the anesthesia made Lucas nauseous and he threw up 7 times. Our anesthesia doctor ordered Lucas antinausea medicine and Tylenol.

From 9am to 3:30pm Lucas was trying to stabilize in the post op area. The nurses were extremely kind to give us so long in the post op area. Normally you have a max of 2 hours to stabilize and if you need more time you’re forced to be admitted overnight. 

I should mention Dr. Smithers (surgeon who performed the bronchoscopy) found a cyst on Lucas’ vocal chord. Dr. Smithers believes the cyst is due to repeat intubation from anesthesia. The cyst can be ignored unless Lucas “becomes a world famous opera singer”. :-) 

Once we returned to the Yawkey House (Boston Children’s Hospital housing), we used some of the medicine we brought ftom AZ to make Lucas comfortable. For example, CPT (chest percussion therapy machine), atrovent, QVAR, hypotonic saline 3%, nebulizer, and Tylenol. 

When Lucas work up on Saturday morning, he was happy & singing. In fact, he said, “everyone clap!”. Then, he proceeded to sing loudly “If You’re Happy & You Know It”. Seriously, Lucas is the strongest person I know!

Thank you Jesus for another successful surgery and for protecting Lucas’ brain from any harm!!!

Prayer Request for Surgery

​Prayer request…

On Friday at 7:30am ET, Lucas has a surgery at Boston Children’s Hospital. Please pray Lucas’ bronchoscopy & esophagus dilation are a success with no complications. Give Lucas’ body all of the strength it needs to come out of surgery with minimum pain. Lastly, take away any fears or nervousness from Bryan, our family, and me.
Surgery day is never easy. But we know the Lord is by our side.