On last Friday (Valentine’s Day), Lucas turned 9 months old. He’s growing up too fast! I remember when he was just a helpless newborn baby. Now, he’s crawling at lightening fast speed, crawling up and over things, pulling himself up to his knees and then a standing position, and showing more and more of his adorable personality.
Once again, a successful surgery with no leaks! Since the last surgery 3 weeks ago, Lucas’ top section shrunk back down from 12mm to 9mm. Today, Dr. McOmber was able to stretch the section back to 12mm. The end goal is 15mm. For now, it looks like the top section wants to keep shrinking back down. But seems to always settle around 9mm which is a good width around.
Dr. McOmber feels the top section is at a good size and feels the lower section now needs to be addressed by having Dr. Egan and Dr. Graziano perform the big surgery on the lower stricture. In the coming week(s), Dr. Egan & Dr. McOmber will create a game plan with a detailed timeline. We are excited & nervous about the upcoming big surgery. Dreading a long hospital stay of 2 – 4 weeks. Nervous about possible complications. At the same time, excited to have the big surgery behind us! This surgery will allow Lucas to eventually eat more solid foods and drink more formula at each sitting like a “normal” baby. For now, he can only have stage 1 solids to avoid getting food stuck in his lower stricture which is only 6mm. Whereas most other babies are already at stage 3 solids & even finger foods. Plus, he needs to eat every 2 hours because his esophagus quickly gets filled up with formula which makes him feel like he’s choking. Most normal babies eat every 5 hours.
We will continue to give up all of our worries to the Lord. May the Lord continue to give us all of the wisdom & strength we need to keep fighting Lucas’ battle.
Our nanny made us some awesome Valentine’s Day presents! Lucas hand painted both of the hearts, ripped them down the center, & even took a bite out of one. Just precious! Plus she made a scrapbook page & chocolate covered strawberries. Yummy!
Last night, Jackie babysat Lucas so we could have a romantic Valentine’s Day dinner out. We had a scrumptious meal at the Sushi Room. This is the 2nd time we’ve ever had a dinner out without Lucas. Now that Jackie can feed Lucas, we need to do this more often.
This post is long over due. Jackie started as Lucas’ nanny at the end of November when I went back to work. To say we have an amazing nanny is an understatement! Jackie is extremely caring, loving, uplifting, and focused on Lucas’ development. She always comes up with fun ways to teach Lucas new things. I feel so comfortable going into my home office every day because Jackie does a fabulous job at taking care of Lucas. Thanks Jackie!!! The Lord blessed us by sending you to Arizona to become Lucas’ angel nanny!
The C.difficile toxin test on Lucas’ stool came back as positive. As stated by the Mayo Clinic, C. difficile is a bacterium that can cause symptoms ranging from diarrhea to life-threatening inflammation of the colon. In severe cases, people tend to become dehydrated and may need hospitalization. C. difficile causes the colon to become inflamed (colitis) and sometimes may form patches of raw tissue that can bleed or produce pus (pseudomembranous colitis).
Unfortunately, Lucas has a severe case which has lasted almost 3 weeks and is causing mucousy diarrhea up to 10 times a day with blood in his stool. Poor baby! On Friday evening, we received word of the positive test results. Now Lucas is taking antibiotics 4 times a day for 10 days.
We have no idea where Lucas picked up the bacteria. However, C.difficile infection is most commonly associated with health care, occurring in hospitals and other health care facilities where a much higher percentage of people carry the bacteria. So the best bet is Lucas picked up the bacteria during his last hospital stay at PCH on January 6.