Dr. Manfredi agreed we should push out Lucas’ surgery for this week until Lucas is back to 100% without the antibiotic & breathing medicines. By the end of the week, we hope to start stepping down the breathing medicines. We are sad to miss out on the many events planned for the big EA Reunion at Boston Children’s Hospital. But we know it is best for Lucas to not go under anesthesia when his lungs are not 100%.

If all goes as planned, our next surgery date is September 3. For now, we will relax in AZ & enjoy time with family.