26th Surgery on Thursday

Please pray for Lucas to have another successful esophagus surgery on Thursday at Boston Children’s Hospital. This will be Lucas’ 26th surgery.

This time, Gigi (my Mom/Gayle) will be with us. Yippee! Our plan is to do some outdoor or touristy things on Saturday and Sunday. Currently we’re on the waiting list for complimentary Red Sox tickets. Not holding me breath. No matter what, we’ll be laughing & having fun.

Boston, here we come!

Rickets Update

On Tuesday, we received wonderful news from Dr. McClellan (Lucas’ Endocrinologist). Based on the blood results from April and now in August, Lucas’ “rickets are completely gone!” Of course, I cried at the news.

To think, we discovered Lucas’ rickets issues in March 2014. At that time, no one could tell us if this would be a lifelong bone growth issue or something Lucas could grow out of. In March 2014, Lucas was in the 11% for height. Fast forward 18 months, to now, and Lucas is all the way back up to the 54% for height. Dr. McClellan is extremely pleased with Lucas progress. If Lucas stays flat at the 54% for height for the rest of his childhood, then Dr. McClellan predicts Lucas would be 5′ 10″ or 5’11”. However, Dr. McClellan feels Lucas is doing exceptionally well with his growth and that he could possibly meet his full genetic potential of being in the 95% for height which would place Lucas in the 6’2″ range. Thank you Jesus for taking this worry off of our hearts & minds!

Since Lucas is doing so well, Dr. McClellan recommended taking Lucas off of the vitamin D supplement. In 6 weeks, we will run another set of labs to ensure Lucas’ body is staying in the normal range without the extra vitamin D supplement. If all goes well, then we will run labs again at the end of November.

For now, Lucas is only taking calcium 2x per day to keep his rickets numbers stable. Eventually we should be able to stop taking the calcium supplements.

Feeling blessed and grateful Lucas’ body has beaten rickets. Lucas is our fearless warrior. With the Lord on our side, we can fight any battle and win!

Family Time

Here is another blog with pictures which I forgot to hit publish to back in July. Now, I’m all caught up…Papa Bob, Nani, & Papa Lou came over for dinner. Lucas had a blast running around the house & showing off for his grandparents. Big thanks to Papa Bob & Nani for the tasty dinner!

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Happy Father’s Day

Happy Belated Father’s Day to Dada (Bryan), Papa Lou, & Papa Bob! I thought I posted this blog with pictures from Father’s day back in June. But, I’m seeing now that I never hit publish. Better late than never!

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A Parent’s Love

Thank you Lord for brining Lucas into this world as our son. Most importantly, thank you for giving us the strength to fight all of Lucas’ battles with grace and tenacity.

“I have laid my child in a surgeon’s arms. I have slept upright in a hospital chair. I have listened to the beeping of machines and been thankful. I have smiled through the tears. I have found strength when there wasn’t any left. A parent’s love is the fuel that enables a normal human being to do the impossible.”

EA/TEF – An Overview

Esophageal Atresia and Tracheoesophageal Fistula. Today those words just roll off my tongue, but two and a half years ago, I had never heard of it. Jill and I found out at our 20-week ultrasound that Lucas “lacked a stomach bubble,” and that fact combined with Jill’s high fluid level meant that Esophageal Atresia was suspected. Ultrasounds are really good at seeing fluid – amniotic fluid and blood. They are really bad at seeing just about everything else. You can see the outline of the baby on ultrasound because the baby is floating in fluid. You can see the heart well on ultrasound because of the blood flow. On ultrasound, you can see the stomach fill and empty with fluid as the baby swallows, unless of course, your baby can’t swallow.

The below video is a good overview of Lucas’ original and longest running battle. It shows the exact type of EA/TEF Lucas was born with. The surgery they describe in this video was performed when our tiny pre-mature Lucas was just 26 hours old. What a fighter and little miracle he has always been!