Esophageal Atresia and Tracheoesophageal Fistula. Today those words just roll off my tongue, but two and a half years ago, I had never heard of it. Jill and I found out at our 20-week ultrasound that Lucas “lacked a stomach bubble,” and that fact combined with Jill’s high fluid level meant that Esophageal Atresia was suspected. Ultrasounds are really good at seeing fluid – amniotic fluid and blood. They are really bad at seeing just about everything else. You can see the outline of the baby on ultrasound because the baby is floating in fluid. You can see the heart well on ultrasound because of the blood flow. On ultrasound, you can see the stomach fill and empty with fluid as the baby swallows, unless of course, your baby can’t swallow.
The below video is a good overview of Lucas’ original and longest running battle. It shows the exact type of EA/TEF Lucas was born with. The surgery they describe in this video was performed when our tiny pre-mature Lucas was just 26 hours old. What a fighter and little miracle he has always been!